So we are headed back to finish the trilogy with Post-Disposed - Revisited and bring the story up to date with a final fling at this years Edinburgh Fringe...
It has been quite the trip since we first struggled through a week of shows back in 2017 with THE PRE-DISPOSED supported by some real friends and legends from the Fringe from Simon Munnery to Eddie Izzard, to getting to Russia and the non FDA or western neurologist approved HSCT, to the 2018 return with the show THE POST-DISPOSED 2018 and subsequent European tour...
It started out in 2017 as a dark idea that as with only the 'Suck It Up' and wait for the progression prognosis offered by Western medicine (Still the situation for PPMS population!!) I had hoped to be the Fringiest Show on the Fringe as people could come back each year and see how I had progressed...
No one ever liked the joke! LOL
It's been a hell of a ride, damage done is still the damage done but I get stronger everyday... It has been life-changing,
Tell all the people!
It has been quite the trip since we first struggled through a week of shows back in 2017 with THE PRE-DISPOSED supported by some real friends and legends from the Fringe from Simon Munnery to Eddie Izzard, to getting to Russia and the non FDA or western neurologist approved HSCT, to the 2018 return with the show THE POST-DISPOSED 2018 and subsequent European tour...
It started out in 2017 as a dark idea that as with only the 'Suck It Up' and wait for the progression prognosis offered by Western medicine (Still the situation for PPMS population!!) I had hoped to be the Fringiest Show on the Fringe as people could come back each year and see how I had progressed...
No one ever liked the joke! LOL
It's been a hell of a ride, damage done is still the damage done but I get stronger everyday... It has been life-changing,
Tell all the people!
Any Press who find yourselves here please find the official release attached here:
| edinburgh_2019_release.docx |
Straight after the Fringe we head back to Russia for a 20 month post transplant follow-up with the great Dr. F and his magical team that are changing peoples lives from all over the world ever since... it will be emotional...
I will arrive on Monday 9th and get an MRI and other tests that day and on Thursday receive results with Dr. Fedorenko and Fly home in Friday with some real definitive feedback on if everything is still on track!
Contrasted with... I received an MRI in Ireland, where they refused to give me contrast and I had to wait 6 months for a neurologist appointment where I was told there was issues but it is nothing to worry about as MRIs are not really reliable anyway.
The Irish public health system is a shambles and it will cost the same to do this trip to Moscow as having a private MRI in the Mater!
#WhatHaveTheRussiansEverDoneForUs
I will arrive on Monday 9th and get an MRI and other tests that day and on Thursday receive results with Dr. Fedorenko and Fly home in Friday with some real definitive feedback on if everything is still on track!
Contrasted with... I received an MRI in Ireland, where they refused to give me contrast and I had to wait 6 months for a neurologist appointment where I was told there was issues but it is nothing to worry about as MRIs are not really reliable anyway.
The Irish public health system is a shambles and it will cost the same to do this trip to Moscow as having a private MRI in the Mater!
#WhatHaveTheRussiansEverDoneForUs
